New to Cleft & Craniofacial Team Care
Collapse Genetics 101: A Primer in Cleft and Craniofacial Genetics for the Non-Genetics Provider

This webinar was originally accepted as a Teaching Course for ACPA's 77th Annual Meeting.

This lecture-based foundational course is designed to help explain the basics of genetic and environmental causation of common cleft and craniofacial conditions. This will serve as a primer on topics like inheritance patterns, genetic family trees, basic genetic testing strategies and interpretation of results. We will discuss the role of a genetic counselor versus a clinical geneticist and what a formal genetic consult entails. Attention will be given to different specific syndromic and non-syndromic diagnoses and describe how a clinician might work to recognize a child at risk for a formal genetic diagnosis. As a part of this education we will explain how different genetic tests may or may not help identify a suspected problem, when and how certain tests should be ordered, and how those results are interpreted. Lastly, we will touch on how genetics researchers are working to identify new candidate genes which may have a role in cleft and craniofacial conditions.

Continuing Education

Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through March 31, 2022. 

  • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

Nursing: This nursing continuing professional development activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.

To receive 1.0 contact hours:

  • Learners must attend 80% or more of the webinar.
  • Learners must complete and submit an evaluation form.

Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name. 

Original Seminar Date: October 22, 2020

On-Demand Release Date: October 23, 2020

On-Demand Expiration Date: March 31, 2022

Original Seminar Date: October 22, 2020
On-Demand Release Date: Available Now

Approved Credit:
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ANCC: 1 hour Nursing Contact Hours

  • MORE INFOMORE INFO Genetics 101: A Primer in Cleft and Craniofacial Genetics for the Non-Genetics Provider
    Collapse Hemifacial Microsomia: An Interdisciplinary Integrated Approach to Care

    This webinar will provide a comprehensive discussion on managing the child with hemifacial microsomia/craniofacial microsomia (HFM) from birth through adulthood. Each of our professional specialists – anaplastologist, audiologist, nurse coordinator, orthodontist, surgeon, psychologist, speech pathologist and surgeon - will provide expert opinion on the integrated multidisciplinary approach that includes not only dento-skeletal and soft tissue reconstruction, but also the equally important components of audiology, speech and psychological support essential for successful treatment outcomes.

     

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through August 15, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    • ASHA: This program is offered for 0.10 ASHA CEUs (Intermediate Level, Professional Area).

    • NCNA: This continuing nursing education activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. To receive 1.0 contact hours nurses must attend at least 80% of this CNE activity and complete an evaluation. 
    Original Seminar Date: August 15, 2019
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ASHA: 0.10 hours CEUs
  • ANCC: 1 hour Nursing Contact Hours

  • MORE INFOMORE INFO Hemifacial Microsomia: An Interdisciplinary Integrated Approach to Care
    Collapse Transition of Care for Young Adults with Cleft Lip and Palate: We

    Background and purpose: For many young adults with cleft lip and palate (CLP), traditional team services come to an abrupt end at age 18, necessitating a transition from child-centered to adult-centered care. There is a shift in focus from the cleft itself and clinician reported outcomes to patient self-report about the perceived impact of the cleft. Transition also befalls the parents and team providers. We propose an evidence-based person-centered delivery model of care using the concepts of the International Classification of Functioning, Disability, and Health (ICF) (WHO, 2001, 2004). The ICF represents a shift from health condition and body impairment-centered descriptions of disability to a more comprehensive documentation, including a wider range of functionality indicators. This model of Transition of Care is proposed to facilitate a positive shift from pediatric to adult-centered care. It is timely for teams to embrace the concept of transition of care, and to provide services that recognize the importance of personal and environmental factors in facilitating holistic transition planning and service delivery (ICF, WHO, 2001), which are developmentally appropriate to young adults with CLP (Farre & McDonagh, 2017; Farre et al., 2016).
    The purpose of this proposed evidence based model is to provide a framework for redesigning the way services are delivered to a young adult with CLP. The concepts of this model are relevant to all specialists on the cleft palate team. The aim of this presentation is to create an awareness of young adults with CL/P who are generally a neglected population in terms of team care and to suggest a new and fresh approach to service delivery to these individuals with the emphasis on clinical resources.

    Content: A brief overview of adolescents and young adults with CLP and their multidisciplinary needs will be presented. A framework for a holistic service delivery model developed by Vallino and Louw (2017) will be presented. We will suggest strategies for teams to improve the care for young adults with CLP and share a clinical toolbox comprised of a compendium of resources.
    Conclusion: The proposed Service Delivery Model for young adults with CLP necessitates a change in perspective that embraces constructs such as person-centered care in order to ensure the best outcomes for these individuals. These concepts can be applied by all cleft palate team members. Adopting a life span perspective reinforces the understanding that living with and managing CLP is dynamic and that transition is a process rather than a point in a person's life. 

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through December 4, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    Original Seminar Date: December 04, 2019
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)

  • MORE INFOMORE INFO Transition of Care for Young Adults with Cleft Lip and Palate: We