Patient Support & Care Coordination
Collapse Feeding Challenges in Oral Clefting: A Multidisciplinary Team Approach to Supporting Growth and Avoiding Malnutrition

This webinar was originally accepted as a Teaching Course for ACPA's 77th Annual Meeting.

This multidisciplinary presentation will identify the role of each feeding-related specialty involved in our cleft nutritional management approach and discuss pearls and pitfalls at each stage of infant development. The importance of early, frequent, and supportive interactions with families will be stressed and we will detail the appropriate assessments and interventions necessary to help these children and their families meet age-appropriate nutrition and lactation goals throughout the first year of life. We will highlight ways in which different team compositions can maximize their newborn feeding support, teach food and cup transitions, and provide appropriate post-operative nutritional recommendations.

The target audience for this presentation will be anyone involved with nutrition, feeding, or lactation education and assessment of patients with a cleft or craniofacial condition.

 

Continuing Education

Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through March 31, 2022. 

  • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

Nursing: This nursing continuing professional development activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.

To receive 1.0 contact hours:

  • Learners must attend 80% or more of the webinar.
  • Learners must complete and submit an evaluation form.

Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name. 

Original Seminar Date: September 15, 2020

On-Demand Release Date: September 16, 2020

On-Demand Expiration Date: March 31, 2022

Original Seminar Date: September 15, 2020
On-Demand Release Date: Available Now

Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ANCC: 1 hour Nursing Contact Hours

  • MORE INFOMORE INFO Feeding Challenges in Oral Clefting: A Multidisciplinary Team Approach to Supporting Growth and Avoiding Malnutrition
    Collapse Hemifacial Microsomia: An Interdisciplinary Integrated Approach to Care

    This webinar will provide a comprehensive discussion on managing the child with hemifacial microsomia/craniofacial microsomia (HFM) from birth through adulthood. Each of our professional specialists – anaplastologist, audiologist, nurse coordinator, orthodontist, surgeon, psychologist, speech pathologist and surgeon - will provide expert opinion on the integrated multidisciplinary approach that includes not only dento-skeletal and soft tissue reconstruction, but also the equally important components of audiology, speech and psychological support essential for successful treatment outcomes.

     

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through August 15, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    • ASHA: This program is offered for 0.10 ASHA CEUs (Intermediate Level, Professional Area).

    • NCNA: This continuing nursing education activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. To receive 1.0 contact hours nurses must attend at least 80% of this CNE activity and complete an evaluation. 
    Original Seminar Date: August 15, 2019
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ASHA: 0.10 hours CEUs
  • ANCC: 1 hour Nursing Contact Hours

  • MORE INFOMORE INFO Hemifacial Microsomia: An Interdisciplinary Integrated Approach to Care
    Collapse Management of Feeding and Swallowing in Infants with Pierre Robin Sequence and Airway Obstruction

    This webinar was originally accepted as a Teaching Course for ACPA's 77th Annual Meeting.

    This webinar will include a discussion about the involvement of feeding and swallowing specialists to optimize airway management in the Pierre Robin Sequence and cleft palate population.

     

    Continuing Education 

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through March 31, 2022. 

    • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

    Nursing: This nursing continuing professional development activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.

    To receive 1.0 contact hours:

    • Learners must attend 80% or more of the webinar.
    • Learners must complete and submit an evaluation form.

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name. 

    Original Seminar Date: November 24, 2020

    On-Demand Release Date: November 25, 2020

    On-Demand Expiration Date: March 31, 2022

    Original Seminar Date: November 24, 2020
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ANCC: 1 hour Nursing Contact Hours
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)

  • MORE INFOMORE INFO Management of Feeding and Swallowing in Infants with Pierre Robin Sequence and Airway Obstruction
    Collapse Managing Cleft Care in the Middle East: Avoiding Missteps and Misconceptions

    The Middle East and North Africa (MENA) have a combined population of 700 million with an annual birth of at least 14,000 patients with clefts. Given the political turmoil in the region, there are multiple subpopulations, where even the most rudimentary pieces of cleft care are not present, suggesting that the numbers of untreated, or inadequately treated, patients have already out-pacing the capacity of regional providers to care for these patients. This presentation will 1) Assess the cleft landscape of MENA, 2) Provide an overview of current work being done in the region, 3) Identify potential solutions to the shortfalls of current strategies, 4) Develop mechanisms to improve the quality of cleft care delivered in the region, and 5) Provide a roadmap for future regionalization of cleft care.

    Strategies for building cleft care capacity in MENA must start with individual volunteer trips, then grows to incorporate local team development, and must also broaden into regional strategies to improve access to care for patients with clefts and their families. When preparing for individual volunteer trips, the following scheme is utilized: 1) Pre-screening of hospital capacities including the presence of an intensive care unit, 2) Clear communication with local partners, 3) Pre-operative evaluation of all patients by all team members, including, but not limited to, pediatricians, anesthesiologists, speech and language pathologists, and surgeons; 4) Clear decision making that the operation for each child is the correct operation at the right time, 5) Standard algorithms for care pre-, intra-, and post-operatively; 6) Appropriate monitoring of patients during recovery and through discharge, 7) Timely discharge with appropriate follow-up, 8) Routine re-evaluation of the quality of outcomes; 9) Developing a standard process for morbidity and mortality discussions, 10) Identifying metrics for outcomes, including, but not limited to, quality of lip repair, adequacy of bone grafting, and speech outcomes, and 11) Instituting a database to track these metrics. Individual volunteer trips must transition to local team development. These teams should conduct their cleft work with algorithms that emphasize safety and high-quality outcomes. This work must then transition to identification of regional centers where cleft care may best be delivered, and to develop mechanisms for these reginal centers to communicate with each other in order to develop an overall strategy for MENA. The co-authors will present the results of a combined 45 years' experience with cleft work in MENA, and share insights about how to address these methodological items, all with the intent of improving cleft care within MENA. In sum, sustainable improvements in cleft care must start with safety, attention to detail, a strong will to teach, and providing local and regional strategies to improve cleft care in MENA.

    Original Seminar Date: June 07, 2019
    On-Demand Release Date: Available Now
    MORE INFOMORE INFO Managing Cleft Care in the Middle East: Avoiding Missteps and Misconceptions
    Collapse Mandibular Distraction Osteogenesis for Neonatal Airway Obstruction: Optimizing Results with Evidence-Based Patient Selection & Virtual Surgical Planning

    This webinar was originally accepted as a Teaching Course for ACPA's 77th Annual Meeting.

    This course will be taught by a multidisciplinary panel that provides care for neonates with airway obstruction. Thecourse will discuss the pathophysiology of Pierre Robin Sequence and illustrate mandibular distraction surgery aswell as refinements in perioperative care. Furthermore, we will discuss new sleep data on normative infants that haschanged our team's appreciation of "abnormal" sleep, allowing for callibration of existing patient selection algorithmsfor mandibular distraction osteogenesis. Finally, we will detail the the advantages of computer-assisted design andmodeling (CAD-CAM) to optimize operative results.

     

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through March 31, 2022. 

    • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

    Nursing: This nursing continuing professional development activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.

    To receive 1.0 contact hours:

    • Learners must attend 80% or more of the webinar.
    • Learners must complete and submit an evaluation form.

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name. 

    Original Seminar Date: August 4, 2020

    On-Demand Release Date: August 5, 2020

    On-Demand Expiration Date: March 31, 2022

    Original Seminar Date: August 04, 2020
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ANCC: 1 hour Nursing Contact Hours

  • MORE INFOMORE INFO Mandibular Distraction Osteogenesis for Neonatal Airway Obstruction: Optimizing Results with Evidence-Based Patient Selection & Virtual Surgical Planning
    Collapse Multi-Team Experiences of Care Coordination

    Care coordination of a child with a cleft or craniofacial abnormality is multifaceted and at times complicated. Topics of discussion will include 1) the prenatal visit with team providers and preparing couples for the birth of their baby, 2) feeding protocol for infants with a cleft, 3) serving a culturally diverse population, and 4) working with interdisciplinary team members to deliver comprehensive care to medically complex children/families with cleft and craniofacial diagnoses.

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through November 14, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    • ASHA: This program is offered for 0.10 ASHA CEU's (Intermediate Level, Professional Area).

    • Nursing:  This continuing nursing education activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. To receive 1.0 contact hours nurses must attend at least 80% of this CNE activity and complete an evaluation.

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name.

    On-Demand Expiration Date:  November 14, 2021

    Original Seminar Date: November 14, 2019
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ASHA: 0.10 hours CEUs

  • MORE INFOMORE INFO Multi-Team Experiences of Care Coordination
    Collapse My Changing Face: Preparing Teens for Orthognathic Surgery

    This presentation provides an in-depth overview detailing the pre-surgical education provided to patients and their parents prior to undergoing orthognathic surgery to help manage expectations, improve compliance, and set realistic expectations of their post-operative course. Following liquid diet compliance is crucial to appropriate healing and an in-depth review of longer-term liquid diet management and ideas is provided by a registered dietitian. Post-surgical pain control, oral care, diet and activity restrictions and management of potential post-surgical complications both in the hospital and at home after discharge will be discussed. This presentation will also discuss suicide screening in the adolescent patient and focus on many of the unique care needs facing the adolescent patients and their family as well as preparing them for the psychosocial challenges they may experience with a complex surgery that will alter their facial aesthetics.

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through April 21, 2022.

    • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual speaker disclosures may be found in the “Topics” tab under their name.

    Original Seminar Date: April 21, 2020
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)

  • MORE INFOMORE INFO My Changing Face: Preparing Teens for Orthognathic Surgery
    Collapse Strategies for optimizing audiologic assessments and minimizing sedation for young children with cleft lip/palate and craniofacial conditions

    This webinar was originally accepted as a Teaching Course for ACPA's 77th Annual Meeting.

    A pediatric audiologist with extended experience working as part of a multidisciplinary cleft and craniofacial team will address the overarching implications of temporary and permanent hearing loss in infants and children, particularly the impact on those with cleft and craniofacial conditions. We will review methods of behavioral and electrophysiological testing, including Visual Reinforcement Audiometry (VRA), Conditioned Play Audiometry (CPA), unconventionaltechniques, two-person testing, Otoacoustic Emission Testing (OAEs), sedated or non-sedated Auditory Brainstem Response Testing (ABR), and Auditory Steady State Response Testing (ASSR). Test methods that do not require sedation will be discussed in depth, including the benefits and challenges of each modality. The aim of this discussion is to broaden the cleft and craniofacial team's "toolkit." We hope this will encourage reflection of your team's current audiologic practices, spur consideration of alternative/adjunctive strategies in these challenging situations, and improve overall care for children with cleft and craniofacial conditions.

     

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through March 31, 2022. 

    • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians. 

    • ASHA: This program is offered for 0.10 ASHA CEUs (Intermediate Level, Professional Area).

    Nursing: This nursing continuing professional development activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.

    To receive 1.0 contact hours:

    • Learners must attend 80% or more of the webinar.
    • Learners must complete and submit an evaluation form.

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name. 

    Original Seminar Date: August 25, 2020

    On-Demand Release Date: August 26, 2020

    On-Demand Expiration Date: March 31, 2022

    Original Seminar Date: September 23, 2020
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ANCC: 1 hour Nursing Contact Hours
  • ASHA: 0.10 hours CEUs

  • MORE INFOMORE INFO Strategies for optimizing audiologic assessments and minimizing sedation for young children with cleft lip/palate and craniofacial conditions
    Collapse Transition of Care for Young Adults with Cleft Lip and Palate: We

    Background and purpose: For many young adults with cleft lip and palate (CLP), traditional team services come to an abrupt end at age 18, necessitating a transition from child-centered to adult-centered care. There is a shift in focus from the cleft itself and clinician reported outcomes to patient self-report about the perceived impact of the cleft. Transition also befalls the parents and team providers. We propose an evidence-based person-centered delivery model of care using the concepts of the International Classification of Functioning, Disability, and Health (ICF) (WHO, 2001, 2004). The ICF represents a shift from health condition and body impairment-centered descriptions of disability to a more comprehensive documentation, including a wider range of functionality indicators. This model of Transition of Care is proposed to facilitate a positive shift from pediatric to adult-centered care. It is timely for teams to embrace the concept of transition of care, and to provide services that recognize the importance of personal and environmental factors in facilitating holistic transition planning and service delivery (ICF, WHO, 2001), which are developmentally appropriate to young adults with CLP (Farre & McDonagh, 2017; Farre et al., 2016).
    The purpose of this proposed evidence based model is to provide a framework for redesigning the way services are delivered to a young adult with CLP. The concepts of this model are relevant to all specialists on the cleft palate team. The aim of this presentation is to create an awareness of young adults with CL/P who are generally a neglected population in terms of team care and to suggest a new and fresh approach to service delivery to these individuals with the emphasis on clinical resources.

    Content: A brief overview of adolescents and young adults with CLP and their multidisciplinary needs will be presented. A framework for a holistic service delivery model developed by Vallino and Louw (2017) will be presented. We will suggest strategies for teams to improve the care for young adults with CLP and share a clinical toolbox comprised of a compendium of resources.
    Conclusion: The proposed Service Delivery Model for young adults with CLP necessitates a change in perspective that embraces constructs such as person-centered care in order to ensure the best outcomes for these individuals. These concepts can be applied by all cleft palate team members. Adopting a life span perspective reinforces the understanding that living with and managing CLP is dynamic and that transition is a process rather than a point in a person's life. 

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through December 4, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    Original Seminar Date: December 04, 2019
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)

  • MORE INFOMORE INFO Transition of Care for Young Adults with Cleft Lip and Palate: We
    Collapse World Cleft Coalition: Creating International Treatment Guidelines

    This webinar was originally accepted as a Teaching Course for ACPA's 77th Annual Meeting.

    The International collaboration between six organizations involved in long term delivery of cleft care, in the development of an agreed set of globally-recognized minimum core practice and best practice guidelines for safe and comprehensive cleft care. In addition to creating these guidelines, it was the collaborative process between the founding NGO's that was the unexpected strength and success of this initiative. It is an example of diverse organizations collaborating in the enhancement of cleft care. The purpose of this panel discussion is to present results of joint efforts to establish best practice guidelines and to solicit and engage attendees to discuss their experiences in building and supporting worldwide cleft care.

     

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through March 31, 2022. 

    • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

    Nursing: This nursing continuing professional development activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.

    To receive 1.0 contact hours:

    • Learners must attend 80% or more of the webinar.
    • Learners must complete and submit an evaluation form.

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name. 

    Original Seminar Date: July 21, 2020

    On-Demand Release Date: July 22, 2020

    On-Demand Expiration Date: March 31, 2022

    Original Seminar Date: July 21, 2020
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ANCC: 1 hour Nursing Contact Hours

  • MORE INFOMORE INFO World Cleft Coalition: Creating International Treatment Guidelines