Patient Support & Care Coordination
Collapse 22q: An Overview

This course will provide the participant with all relevant background regarding the etiology, frequency, recurrence risk, and resultant features associated with the chromosome 22q11.2 deletion syndrome, as well as, recommended standard of care in screening and follow-up for children and adults based on international healthcare guidelines.

 

Continuing Education

Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through September 26, 2020.

  • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
  • ASHA: This program is offered for 0.10 ASHA CEUs (Introductory Level, Professional Area).

  • NCNA/ANCC: This continuing nursing education activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center's Commission on Accreditation. 
Original Seminar Date: September 27, 2018
On-Demand Release Date: Available Now

Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • NCNA: 1 hour Nursing Contact Hours
  • ASHA: 0.10 hours CEUs

  • MORE INFOMORE INFO 22q: An Overview
    Collapse Ethical Issues in Cleft Care

    This course provides a case based discussion of ethical principles applied to cleft patients. Caring for patients with cleft and craniofacial anomalies can bring up many ethical issues. Addressing these ethical issues is critical to the success of a patient-centered multidisciplinary approach and successful patient care.

    Continuing Education 

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through October 29, 2020. 

    • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians. 

    • ASHA: This program is offered for 0.10 ASHA CEUs (Introductory Level, Professional Area). 

    • NCNA/ANCC: This continuing nursing education activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. To receive contact hours nurses must attend 80% of this CNE activity.

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name.

    Original Seminar Date: October 29, 2018
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • NCNA: 1 hour Nursing Contact Hours
  • ASHA: 0.10 hours CEUs

  • MORE INFOMORE INFO Ethical Issues in Cleft Care
    Collapse Hemifacial Microsomia: An Interdisciplinary Integrated Approach to Care

    This webinar will provide a comprehensive discussion on managing the child with hemifacial microsomia/craniofacial microsomia (HFM) from birth through adulthood. Each of our professional specialists – anaplastologist, audiologist, nurse coordinator, orthodontist, surgeon, psychologist, speech pathologist and surgeon - will provide expert opinion on the integrated multidisciplinary approach that includes not only dento-skeletal and soft tissue reconstruction, but also the equally important components of audiology, speech and psychological support essential for successful treatment outcomes.

     

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through August 15, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    • ASHA: This program is offered for 0.10 ASHA CEUs (Intermediate Level, Professional Area).

    • NCNA: This continuing nursing education activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. To receive 1.0 contact hours nurses must attend at least 80% of this CNE activity and complete an evaluation. 
    Original Seminar Date: August 15, 2019
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ASHA: 0.10 hours CEUs
  • NCNA: 1 hour Nursing Contact Hours

  • MORE INFOMORE INFO Hemifacial Microsomia: An Interdisciplinary Integrated Approach to Care
    Collapse Management Gastrointestinal and Feeding Issues in the 22q Deletion Syndrome Population

    This webinar will provide a comprehensive discussion on the gastrointestinal and feeding manifestations seen in 22q DS.  A case will be discussed to illustrate key points.  Material covered will include the incident, pathophysiology, clinial manifestations, evaluation, treatment and complications,

     

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through September 4, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    • ASHA: This program is offered for 0.10 ASHA CEUs (Intermediate Level, Professional Area).

    • Nursing:  This activity has been submitted to North Carolina Nurses Association for approval to award contact hours. North Carolina Nurses Association is accredited as an approver of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.  To receive 1.0 contact hours nurses must attend at least 80% of this CNE activity and complete an evaluation.

     

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name.

     

    Original Seminar Date:           September 4, 2019

    On-Demand Release Date:     September 6, 2019

    On-Demand Expiration Date:   September 6, 2021

    Original Seminar Date: September 04, 2019
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ASHA: 0.10 hours CEUs
  • NCNA: 1 hour Nursing Contact Hours

  • MORE INFOMORE INFO Management Gastrointestinal and Feeding Issues in the 22q Deletion Syndrome Population
    Collapse Managing Cleft Care in the Middle East: Avoiding Missteps and Misconceptions

    The Middle East and North Africa (MENA) have a combined population of 700 million with an annual birth of at least 14,000 patients with clefts. Given the political turmoil in the region, there are multiple subpopulations, where even the most rudimentary pieces of cleft care are not present, suggesting that the numbers of untreated, or inadequately treated, patients have already out-pacing the capacity of regional providers to care for these patients. This presentation will 1) Assess the cleft landscape of MENA, 2) Provide an overview of current work being done in the region, 3) Identify potential solutions to the shortfalls of current strategies, 4) Develop mechanisms to improve the quality of cleft care delivered in the region, and 5) Provide a roadmap for future regionalization of cleft care.

    Strategies for building cleft care capacity in MENA must start with individual volunteer trips, then grows to incorporate local team development, and must also broaden into regional strategies to improve access to care for patients with clefts and their families. When preparing for individual volunteer trips, the following scheme is utilized: 1) Pre-screening of hospital capacities including the presence of an intensive care unit, 2) Clear communication with local partners, 3) Pre-operative evaluation of all patients by all team members, including, but not limited to, pediatricians, anesthesiologists, speech and language pathologists, and surgeons; 4) Clear decision making that the operation for each child is the correct operation at the right time, 5) Standard algorithms for care pre-, intra-, and post-operatively; 6) Appropriate monitoring of patients during recovery and through discharge, 7) Timely discharge with appropriate follow-up, 8) Routine re-evaluation of the quality of outcomes; 9) Developing a standard process for morbidity and mortality discussions, 10) Identifying metrics for outcomes, including, but not limited to, quality of lip repair, adequacy of bone grafting, and speech outcomes, and 11) Instituting a database to track these metrics. Individual volunteer trips must transition to local team development. These teams should conduct their cleft work with algorithms that emphasize safety and high-quality outcomes. This work must then transition to identification of regional centers where cleft care may best be delivered, and to develop mechanisms for these reginal centers to communicate with each other in order to develop an overall strategy for MENA. The co-authors will present the results of a combined 45 years' experience with cleft work in MENA, and share insights about how to address these methodological items, all with the intent of improving cleft care within MENA. In sum, sustainable improvements in cleft care must start with safety, attention to detail, a strong will to teach, and providing local and regional strategies to improve cleft care in MENA.

    Original Seminar Date: June 07, 2019
    On-Demand Release Date: Available Now
    MORE INFOMORE INFO Managing Cleft Care in the Middle East: Avoiding Missteps and Misconceptions
    Collapse Multi-Team Experiences of Care Coordination

    Care coordination of a child with a cleft or craniofacial abnormality is multifaceted and at times complicated. Topics of discussion will include 1) the prenatal visit with team providers and preparing couples for the birth of their baby, 2) feeding protocol for infants with a cleft, 3) serving a culturally diverse population, and 4) working with interdisciplinary team members to deliver comprehensive care to medically complex children/families with cleft and craniofacial diagnoses.

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through November 14, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    • ASHA: This program is offered for 0.10 ASHA CEU's (Intermediate Level, Professional Area).

    • Nursing:  This activity has been submitted to North Carolina Nurses Association for approval to award contact hours. North Carolina Nurses Association is accredited as an approver of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.  To receive 1.0 contact hours nurses must attend at least 80% of this CNE activity and complete an evaluation.

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name.

    On-Demand Expiration Date:  November 14, 2021

    Original Seminar Date: November 14, 2019
    On-Demand Release Date: November 15, 2019

    Approved Credit:
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ASHA: 0.10 hours CEUs

  • MORE INFOMORE INFO Multi-Team Experiences of Care Coordination
    Collapse Parenting a Child with Cleft Lip and/or Palate: Behavioral, School, and Social Considerations

    This course is for families of children born with a cleft lip and/or palate and draws upon the psychosocial literature and providers' clinical experience for the topics of addressing behavioral adjustment, school concerns, and social skills. Suggestions and strategies for families are discussed to promote their children's positive psychological outcomes.

    This course does not provide continuing education credit for professionals.

    Original Seminar Date: July 20, 2018
    On-Demand Release Date: Available Now
    MORE INFOMORE INFO Parenting a Child with Cleft Lip and/or Palate: Behavioral, School, and Social Considerations
    Collapse Promoting positive psychosocial outcomes in craniofacial team care: Strategies for non-mental health providers

    This webinar outlines the nature, prevalence, and variation in psychosocial issues across developmental phases, and how these issues can be addressed using a patient-centered multidisciplinary approach. Topics include: how to facilitate psychological adjustment in parents, how to address teasing and bullying, how to promote positive outcomes in school, how to support informed medical decision-making, how to handle periods of transition, and how to use available screening measures to assess and monitor patients' well being. The webinar provides practical suggestions which all team disciplines can apply in practice.

     

    Continuing Education 

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. This on-demand course will be eligible through October 24, 2020. 

    • ACCME: ACPA designates this educational activity for a maximum of 1.0 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians. 

    • ASHA: This program is offered for 0.10 ASHA CEUs (Introductory Level, Professional Area). 

    • NCNA: This continuing nursing education activity was approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. To receive contact hours nurses must attend 80% of this CNE activity.

    Neither the speakers nor members of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosures may be found in the “Topics” tab under their name.

    Original Seminar Date: October 24, 2018
    On-Demand Release Date: Available Now

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • NCNA: 1 hour Nursing Contact Hours
  • ASHA: 0.10 hours CEUs

  • MORE INFOMORE INFO Promoting positive psychosocial outcomes in craniofacial team care: Strategies for non-mental health providers
    Collapse Speech-Language Services for Culturally and Linguistically Diverse Populations with Cleft Conditions
    Formerly titled "Challenging Multilingual/Multicultural Cleft Cases in the US and Abroad"

    This course will provide an overview of assessment and treatment of articulation and resonance in patients from diverse backgrounds, including refugees/recent immigrants, international adoptees, individuals from multilingual backgrounds, and those treated abroad. Case studies will be utilized to illustrate these areas.

    The presenters will describe the speech assessment process for individuals who do not speak the language of the examiner, including the importance of determining differences vs. disorder and the optimal use of interpreters. Surgical timing for individuals who are internationally adopted, considering both psycho-social and language-learning factors will be addressed for typical cases and for those where development has been significantly affected by orphanage time or other causes.

    Complications in surgical timing for individuals with migrant status, differing cultural beliefs about surgery, lack of early surgery, and/or access to speech therapy will also be addressed.

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through October 17, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    • ASHA: This program is offered for 0.10 ASHA CEUs (Advanced Level, Professional Area).

    • Nursing:  This activity has been submitted to North Carolina Nurses Association for approval to award contact hours. North Carolina Nurses Association is accredited as an approver of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.  To receive 1.0 contact hours nurses must attend at least 80% of this CNE activity and complete an evaluation.
    • Neither the speakers nor member of the planning committee have any conflicts of interest related to the content of this activity.  Individual disclosure may be found in the “Topics” tab under their name.

      On-Demand Expiration Date:   November 17, 2021
    Original Seminar Date: October 17, 2019
    On-Demand Release Date: October 18, 2019

    Approved Credit:
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)
  • ASHA: 0.10 hours CEUs
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • NCNA: 1 hour Nursing Contact Hours

  • MORE INFOMORE INFO Speech-Language Services for Culturally and Linguistically Diverse Populations with Cleft Conditions
    Collapse Transition of Care for Young Adults with Cleft Lip and Palate: We

    Background and purpose: For many young adults with cleft lip and palate (CLP), traditional team services come to an abrupt end at age 18, necessitating a transition from child-centered to adult-centered care. There is a shift in focus from the cleft itself and clinician reported outcomes to patient self-report about the perceived impact of the cleft. Transition also befalls the parents and team providers. We propose an evidence-based person-centered delivery model of care using the concepts of the International Classification of Functioning, Disability, and Health (ICF) (WHO, 2001, 2004). The ICF represents a shift from health condition and body impairment-centered descriptions of disability to a more comprehensive documentation, including a wider range of functionality indicators. This model of Transition of Care is proposed to facilitate a positive shift from pediatric to adult-centered care. It is timely for teams to embrace the concept of transition of care, and to provide services that recognize the importance of personal and environmental factors in facilitating holistic transition planning and service delivery (ICF, WHO, 2001), which are developmentally appropriate to young adults with CLP (Farre & McDonagh, 2017; Farre et al., 2016).
    The purpose of this proposed evidence based model is to provide a framework for redesigning the way services are delivered to a young adult with CLP. The concepts of this model are relevant to all specialists on the cleft palate team. The aim of this presentation is to create an awareness of young adults with CL/P who are generally a neglected population in terms of team care and to suggest a new and fresh approach to service delivery to these individuals with the emphasis on clinical resources.

    Content: A brief overview of adolescents and young adults with CLP and their multidisciplinary needs will be presented. A framework for a holistic service delivery model developed by Vallino and Louw (2017) will be presented. We will suggest strategies for teams to improve the care for young adults with CLP and share a clinical toolbox comprised of a compendium of resources.
    Conclusion: The proposed Service Delivery Model for young adults with CLP necessitates a change in perspective that embraces constructs such as person-centered care in order to ensure the best outcomes for these individuals. These concepts can be applied by all cleft palate team members. Adopting a life span perspective reinforces the understanding that living with and managing CLP is dynamic and that transition is a process rather than a point in a person's life. 

    Continuing Education

    Attendees must register, attend and evaluate each webinar to receive continuing education credit. Presenter disclosures can be found in the "Topics" tab in the speaker bio. This course will be available on-demand through December 4, 2021.

    • ACCME: ACPA designates this educational activity for a maximum of 1 AMA PRA Category 1 Credits™.  Physicians should only claim credits commensurate with the extent of their participation in the activity. The American Cleft Palate-Craniofacial Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
    Original Seminar Date: December 04, 2019
    On-Demand Release Date: December 05, 2019

    Approved Credit:
  • ACCME (non-MD/DO): 1 hour AMA PRA Category 1 Credit(s)
  • ACCME: 1 hour AMA PRA Category 1 Credit(s)

  • MORE INFOMORE INFO Transition of Care for Young Adults with Cleft Lip and Palate: We